Action for A-T was established in 2011 by parents whose daughter was diagnosed with a rare life limiting neurological condition named Ataxia Telangiectasia (A-T). The charity’s mission is simple, we aim to speed up the process of identifying a cure for A-T or treatments that delay or prevent the disabling effects of this devastating childhood condition. We do this by seeking and funding high quality peer-reviewed medical research.
Since 2011 we have invested over £2.25 million in 34 A-T related research projects and actively seek collaborations with the research community and like minded charities to increase our investment and maximise our impact.
Further investment into A-T research is urgently required as there is currently no treatment or cure for the condition. 1 in 4 children with A-T will develop cancer or respiratory disorders at some stage and more than half will die before they are out of their teens. Despite these statistics, just 5% (less than £10 per child) of the UK’s annual research spend is committed to paediatric research. As a result, innovative and life changing research is going underfunded.